2001 was a bad year for us. Basicly a bunch of stuff happened that wasn't positive. Here we are, 2007, same deal. Basically nothing has happened that is good so far, and we're only 10 1/2 days in.
Sidney is crying again. Imagine that. 16 months old and he's going to be screaming until he's 3 or 4, right ? Nothing like waking up at 11pm and listening to a toddler tantrum the rest of the night.
Medicaid/care/whatever won't approve any surgeries by competent, Apert experienced surgeons. The 'local guys' should be 'good enough' they say. Great, 2 or 3 fingers on a hand are enough instead of 5, right ?
Maybe we're not praying enough, no wait... TITHING enough, right ? If I just send $14 to some yahoo in Nebraska he'll pray for us, and our son, and everything will be ok. Sorry, haven't had a prayer answered in 35 years, and I'm spotting a trend.
I was going to say I was sorry for the negative energy, but I'm full of it, and I'm not.
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We're going to try and cover how a child born with Apert Syndrome does, and does not have to adapt to everyday life. Surgeries, recoveries, accomplishments, and pictures are all here. Feel free to comment and link to our son's blog if you like. Information is power !
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